We’ve had a very relaxed day and enjoyed homemade pizza for dinner. It’s scary
just how much muscle tone she’s lost after 17 days in hospital; I don’t know
how long it’ll take to get that back but hopefully our stairs will help. The
kids are very, very glad to have mum home. I’m pretty darned happy to have J
home too.
While she’s going to be fatigued for quite a while, I think (and hope) she
will improve faster than she was doing in hospital – being able to get fresh
air and have home cooking should help.
She’ll go back to see the neurologist in a fortnight, and will get another MRI
around then too. Medication-wise she’ll be carefully dropping down her doses
over the next month. Reading through the radiologist’s report from the most
recent scan, there was significant oedema around the tumour, it appears to
have swollen somewhat (5-10% in volume, a bit difficult to determine), and
also appears to have started pressing on one of her ventricles. No wonder she
wasn’t feeling well
I’m just glad she’s well enough to get out of hospital and come home. The
optic nerve inflammation appears to have gone though there’s still some
nystagmus going on, and while she’s still a bit dizzy, it’s not close to the
level it was at pre-admission. At least now she’s home we can establish some
sort of normal-for-us and work on improving things like quality of life. I
recall, too, that she finds baking therapeutic.